PARAMA Alisai
Little Alice... So small, but so much endured... Alice's baptism father approached the foundation with a cry for help:
"In Lithuania, we are raising a baptism daughter from Ukraine, who has been diagnosed with multiple congenital birth defect syndrome (congenital heart disease, macroglossia, diastasis of straight muscles of the anterior abdominal wall, hypertrichosis) due to microstructured chromosomal pathology, Wiedemann-Beckwitz syndrome, polymorphism.
She's almost 3 years old at the moment. Her parents have been bringing the toddler to rehab since birth, but it is becoming more and more difficult to do so financially...
We ask people of goodwill to help our little Alice...".
Let us not be indifferent to this little angel...👼🏼
Alice's story can be found at:
✨TOGETHER WE CAN DO MORE! ✨ ✨
How can you doante:
🔸 A/S LT80 7300 0101 44236452
Recipient – Labdaros ir paramos fondas „Rūpestinga širdelė“ “Swedbank” AB
Bank code – 73000
Purpose – PARAMA ALISAI
🔸 PayPal: https://www.paypal.com/donate?hosted_button_id=KWTRULJ6SLJAE
🔸Sending SMS number 1670 with the word AUKA (SMS price 5 EUR)
ALICE'S STORY 🕊️
With regret, we are talking about the fact that the health and quality of life of our child depends very much on money!
Even the smallest help allows you to collect the necessary amount for another rehabilitation and continue Alice's long journey to recovery!
Alice's diagnoses:
🔻multiple birth defects due to microstructured chromosomal pathology
🔻perinatal damage to the central nervous system,
🔻tonic disorder syndrome,
🔻spastic tetrapareze,
🔻delayed psychomotor development
🔻Wiedemann-Beckwitz syndrome.
Alice is 2 years and 9 months. During all this time, she underwent heart surgery, a week of extremely serious conditions in the intensive care unit without any optimistic prognosis, three months in a perinatal center and countless trips to various specialists. For two and a half years now, we have been trying to help Alice recover, knowing that it will take many more years, putting in even more effort and overcoming new difficulties! Visits to rehabilitation centers and sessions with specialists bring results: Alice holds her head well, is more confident, experts praise her and notice positive dynamics, she becomes more relaxed, her muscle tone becomes smaller, Alice began to talk a lot, tries to repeat words, responds when we approach her. The closest goal is to teach Alice to sit and turn on his own, and we are very close to achieving this goal!
Unfortunately, but without regular rehabilitation courses, Alice is not available! Constant rehabilitation brings us closer to the main goal – to give Alice a life that is taken for granted by you and us as a normal person!
Alice has every chance of having such a life, but it only requires titanic efforts! 🤍
