Roko Istorija

This story is sad and difficult. But with great hope and faith to facilitate the daily life of Rokas and his family, we can...

Roko parents, it's going through it for the second time. A serious, unknown diagnosis 15 years ago took the life of little boy Mantukas. Life will continue and Mantuk's parents have had another wonderful boy, Rokas. A loving, fun and good kid. Rokas was born at 27. 1455 g, 38 cm tall. After giving birth, doctors informed that Roko's mother had chorionamnionitis. In Kaunas clinics, in the reanimate of newcomers, the mother and her son lay for another 2 months. The weight of the Rokas grew well. So, Rokas at 7-8 months began to sit. By then, he was visiting a physician. The child began to walk independently at the age of 1.5 years. And then began to run, where only the eyes see and of course loved to talk.

At the age of 2, Roko development lagged behind. Parents decided to continue to take the child to specialists, but it became increasingly difficult to do so with each... When I entered the office, Rokas was crying and nothing could be done with the child. Therefore, specialists decided to train mom to exercise Roka at home. Time was running out, Rokas was vaginating, but it was noticed that the boy was getting harder to walk, his legs were confused...

Parents immediately after noticing this visited orthopedics, who did not notice anything wrong after the assessment. Parents were directed to geneticists in Kaunas clinics. The neurologist followed... A lot of research... And so until the first quarantine began. When the summer came, the investigations continued. This time, the parents visited geneticists in Vilnius. The studies carried out were not encouraging. The diagnosis announced by doctors is ruthless. GM2 ganglyosis (Tay-Sachs), and there is no cure for it, only symptomatic... Finally, in March this year.m, Rokutis underwent an operation in which a gastro stoma was inserted into his stomach, during which the boy is fed... Currently, Rokas suffers from epilepsy, lack of oxygen.

Rokas doesn't sit on his own, he doesn't walk anymore... If you manage to grab something and keep it in your hands at least a little bit – parents are very happy... Unfortunately, the evolution of Rokutis went back to infancy... Rokutis needs special mixtures, which the family has been using for some time. Financially, however, this is difficult, as the sickness funds do not compensate for this food. We ask all people of goodwill to help.